Showing posts with label family. Show all posts
Showing posts with label family. Show all posts
Tuesday, October 20, 2015
When Everything is Okay
Monday, October 20, 2014
Be Aware
I have shed many tears during the past six years. For my son.
At first, it was out of frustration. I just couldn't figure out what to do, how to care for him and make him comfortable. Then, there were tears of fear and questioning - Would he ever speak? How would his life be different? Next came, tears of joy, at his first words and other accomplishments. So many emotions for me, the mother of a child with Sensory Processing Disorder.
Most recently, I stood in my backyard one evening, crying into my husband's shoulder. Broken-hearted, hurting for my son. He had had his third toileting accident at school, because he was afraid to use the restroom. Despite all our efforts, he wouldn't do it. As a result, he pushed his body to it's limits, holding it until he couldn't anymore.
That night, I cried, "It's not fair!" Not fair that he has to deal with fear and anxiety on a daily basis. Not fair that his body gets confused and reacts to normal stimuli atypically, leaving him uncomfortable and agitated.
While the toileting situation has had me the most distraught lately, what brings me to tears most days is the way O thinks. How his mind analyzes everything to the point of anxiety. It tears my heart apart when I realize all the things that go through his mind, which cause him stress and worry.
Some of those things are:
- Whether or not to tell me about an injury, anticipating that the "medicine" might hurt more or that I might offer him a bandaid -
- Wondering if the new pjs I just bought him for "pajama day" will feel itchy -
- Starting each day thinking about what may be different or out of the ordinary -
- Hoping he doesn't make a mistake on his writing assignment -
- Focusing on how many minutes are left until the bell rings, because he doesn't want to be late for school -
- Needing to inspect his food before he eats it, if he eats it -
But, there is also good news. There is a God who answers prayers. A God who loves O more than I ever could and as a result is responding to the pleas of his people. To take away O's sensitivity to smell in the cafeteria. To make the bathroom less scary, so that it can become a part of his routine at school. God has been showing me that when I can't, he can.
That's the truth I want to rest in, every day. God makes promises and fulfills them. He can!
October is Sensory Awareness Month.
One of the purposes of this blog has always been to raise awareness of SPD.
Will you do your part in raising awareness?
Will you share this with one person today?
Thursday, June 19, 2014
Experiencing God
Wednesday, June 4, 2014
The Promise
Sunday, June 1, 2014
Notice Me
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| SOURCE |
Sunday, April 20, 2014
Six
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| EASTER 2010 |
Wednesday, April 9, 2014
Nine
You are nine today. This is hard for me to believe. Time has gone so fast.
This sensitivity that helps you love more also makes it easier for you to be hurt. I worry about how the big hurts in life will affect you and I pray that God will find a way to protect your heart and help you to see the good in all situations.
I pray that you will always be true to yourself, even if it isn't popular or appreciated by this world. Don't ever stop loving, praying and caring for people. This desire comes from the Holy Spirit in you. As a result, you will be an encouragement and blessing to so many.
Love,
Mom
Saturday, January 18, 2014
Eleven Years {A Letter to my Oldest Daughter}
Dear A,
Today you turn 11. Although it may sound cliche, it really does seem like only yesterday I spent 25 hours in labor awaiting your arrival.
While it is a sweet memory, I don't wish to be back at that day, that time. I am so enjoying watching you grow and develop. Over the past year I have watched you begin to make the emotional and physical transition from a girl to a woman. From Barbie to One Direction. From belonging soley to your dad and I to the embarking on the journey of discovering your own identity.
You are so eager to learn. And, you seem to be soaking in every bit of knowledge life throws at you. Lately, you won't stop talking...about anything and everything. I know I am not always the best listener. And, I'm sorry for that. I pray that God will help me to stop long enough to soak up every word you have to say. Because, I never want you to stop talking to me. I am interested in it all. I am interested in you.
Mom
Tuesday, December 31, 2013
My Favorite Moments {2013}
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| 1. TAKING MY OLDEST & HER FRIENDS ON A LIMO RIDE FOR HER 10TH BIRTHDAY 2. SPENDING THREE DAYS AWAY WITH MY HUBBY FOR MY BIRTHDAY. LOVE THIS PLACE! 3. OUR DISNEY ADVENTURES. DAY ONE, TWO & THREE 4. MY FIRST-EVER FASHION POST 5. OUR BEACH VACATION 6. O'S FIRST DAY OF SCHOOL 7. WOMEN'S RETREAT. HUME LAKE, CA |
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| VERSE 1 - STRESS // VERSE 3 - ANXIETY // VERSE 4 - WORRY |
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| VERSE 11 - BRINGS ME JOY // VERSE 12 - PRAYER |
Thursday, December 26, 2013
How Trains Saved My Son
Tuesday, November 19, 2013
The Big Reveal {Family Photos 2013}
Monday, November 11, 2013
Celebration Saturday
It's funny to
However, my kids were great, phenomenal, high achievers last week. So, to celebrate the various awards, trophies, performances, special invitations and the ability to handle change with ease, we resolved to have a family celebration day on Saturday.
M and I decided we wanted to do something together, as a family. O had been asking to "go somewhere" for awhile now. After the five of us had spent the day together, all three kids giddy with excitement, I realized that it didn't matter to him where we went, but that we went together, as a family. It's something we haven't done since summer ended and school started. It felt good.
We started our day at the zoo. I love our zoo. And, so do our kids. Even though we've been there countless times, we always enjoy it. Some photo highlights from Saturday's trip to the zoo...
Saturday evening, M barbecued, which meant I didn't have to cook dinner - yay for me - and we had a picnic/movie night in the living room. We watched Monsters University, which the girls had already seen, but the rest of us hadn't. It was a great family movie. We laughed, a lot.
Our lives are so busy that we often don't take time to spend a whole day together, laughing together, and enjoying each other's company. It felt good.
Tuesday, October 29, 2013
Battles and Balance
Things had been going well for O lately. He made the transition to kindergarten beautifully and is even ending his first season of soccer. And, while there have been bumps along the way, they have been relatively small and easy to navigate.
However, I have started noticing a change in O's ability to handle those smaller bumps with as much ease as he had been. While he is still keeping it together at school, his inability to handle the stress is evident at home.
This time of year is typically difficult for him. Fall means changes in weather, clothing, and the beginning of the holiday season. All the changes are difficult. Especially when you are an individual who doesn't just like routine, but needs it.
Last week was Red Ribbon Week at my kids' school. During this week every year, the schools in our area focus on creating a fun-filled week for the kids, which teaches them the dangers of drugs and alcohol, in a creative way. This is a positive program, with a lot of value. However, for O, this week is full of things that cause change in his routine and what he has come to expect from kindergarten.
Monday was crazy hair/crazy clothes day. I had a conversation with O that morning about how silly his friends would look because of this special day. He hid under a blanket during the entire conversation, and for the first time, since the first day of school, said, I don't want to go.
When we got to school he was hesitant to go into the classroom, everyone just looked too crazy. Once he realized that the crazy hair didn't necessarily mean that things would be different in the classroom, he was okay. But, for the rest of the week, every time we drove by the school, he asked about those red ribbons on the trees and why they were still there. It's only for this week, I said, every time.
Life with O is a balancing act. We are constantly struggling to make sure we are keeping him comfortable and monitoring his anxiety, yet putting him in situations where his coping skills can be tested and stretched. Usually that means preparing him in advance for situations that may provoke anxiety.
For example, last week O's kindergarten class also took a trip to the pumpkin patch, on a school bus. I knew that the bus could potentially cause anxiety for O, for several reasons: smell, number of kids in close proximity, new experience, and I'm sure more that I don't even know about. So, his teacher and I began talking to him, about the field trip and the bus. Then, I had an idea.
I had seen a bus driver dropping off a student for afternoon kindergarten on the days I picked O up from school. So, one day I asked him if O and I could take a walk through the bus. He was more than willing. As I expected, O didn't even want to go on the bus with me, but he did it. We found things on the bus he liked, like the color of the seats and the fact that each of the rows was numbered - he loves numbers!
The day of the field trip arrived and I didn't notice any anxiety until we got to the classroom. There were 56 kids there instead of the normal 27, because the am and pm kinders were going together on the field trip. He sat with me until the routine (e.g. announcements, singing, stories, etc.) of the day started, then he was fine.
He rode the bus without issue and seemed completely regulated when he got to the pumpkin patch. That was a huge win!
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| WAITING IN LINE, AFTER GETTING OFF THE BUS |
Last year I wrote about our family's trip to this pumpkin patch and O's avoidance of the suspension bridge. Well, this time, he went over the bridge. He held onto me the whole time, as I whispered encouraging words, but he did it. Another win!
After that, however, he had reached his limit. No other stretching could be done. He needed routine and stability. He needed his big squeezes and special water bottle to drink from. He needed me. And, I was grateful that I was able to be there with him.
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| O AND I CALMING DOWN, WHILE SITTING ON BALES OF HAY |
As I drove to work later that afternoon, I thought about the morning and cried and cried. I also stopped for lunch at In-n-Out burger (I'm a bit of a stress eater).
I was so proud of what O had accomplished that day. But, I was still so sad. I realized why. At least that day, I wanted O to do well, for him and for me, but mostly for his peers. I wanted to prevent a melt down because I didn't want any of his friends, or their parents, to see it. He has been making friends and playing well with the boys in his class and I didn't want that to be jeopardized in any way. I didn't want them to know he was different.
Now, I just have one more thing to worry about. Will they treat him differently now? Will their parents judge me for the decisions I made? Maybe they won't even remember. Maybe it really doesn't matter, in the long-run. But, it doesn't mean it doesn't hurt, now.
I tried to talk to one of the mom's about it. She asked, Won't he grow out of it? I never got the chance to tell her, No, he won't. While he has and will continue to develop ways to cope with his anxiety and SPD, it will never leave him. Some days I think it has gotten easier. He has made so much growth. But there are those other days, like the day of the field trip, that I know that his life will always be harder than most.
What I am so grateful for is the truth in this song. I wrote about it my young warrior post and it has become O's theme song, in my mind. They other night, as I was driving O to soccer practice, the song came on the radio...and he started singing it. I know that he is too young to truly understand the words and their meaning. But, I am grateful that he is beginning to speak and rehearse that truth.
The morning of the pumpkin patch trip, O was with me in the bathroom as I was getting ready to go. I started singing, like I often do. This time he finished the words...
Me: The God of angel armies...
O: ...is always by my side.
That's right, buddy. He is.
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